- education plan
- asking what they know
- addressing misconceptions
Thesis: AIDS education is not just “sex ed” or “abstinence only.” There must be discussions that eliminate misconceptions.
- HIV-related stigma and discrimination are now recognized as key barriers both to the delivery of quality services by health providers and to their utilization by community members and health providers themselves.
- limited recognition of the important link between HIV-related stigma and public health outcomes
- insufficient capacity among health care managers regarding how to effectively address stigma and discrimination through programmes and policies. Third, there is a persistent misconception that stigma is too pervasive a social problem to effectively change
Thesis: AIDS education in the health care setting specifically focuses on eliminating stigma that prevents patients from getting the proper treatment.
- Education is so strongly predictive of better knowledge, safer behaviour and reduced infection rates that it has been described as the “social vaccine”, and UN and World Bank experts say it may be ‘the single most effective preventive weapon against HIV/AIDS’.
- “Education Vaccine”
Fear and denial, action inaction, decision making
- “She said, ‘I can’t tell anyone. I can’t tell my son because I’m afraid he won’t let me see my grandchildren. I can’t tell people at work because I’m afraid I’ll lose my job and I’m close to getting my pension.’ ”
- HIV advocates and physicians say they still encounter people with the disease who don’t seek treatment, increasing their risk of death and spread of the disease. By the time they go to hospital, they have deeply compromised immune systems, and sometimes full-blown AIDS.
Thesis: Patients deny themselves the help they need because they are ashamed of the disease.
- self stigma
- “Self-stigma reduces your expectations,” says France. “It makes you reduce your life to just living.”
- Two of our interviewees were recently diagnosed, and one had been living with HIV for 27 years: yet there was no difference in their perceptions. You’d think self-stigma would ebb as time went on, but it’s impervious to new experience or knowledge if it’s something that’s founded in a pre-existing set of negative beliefs about yourself.”
Thesis: Self-Stigma caused by fear of rejection and “anticipated stigma” is preventing patients for getting the care they need.